tag:blogger.com,1999:blog-9220010756067874210.post326236701264329859..comments2023-11-05T06:12:51.403-06:00Comments on Reality Based Medicine: Candice on Cancer, Part IIIViolethttp://www.blogger.com/profile/06774200172248356019noreply@blogger.comBlogger74125tag:blogger.com,1999:blog-9220010756067874210.post-46528851576285986242015-04-12T20:35:22.715-05:002015-04-12T20:35:22.715-05:00Out of interest, Ian, what's your specialty? O...Out of interest, Ian, what's your specialty? Only if you feel comfortable revealing that. Catnoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-44135574727354013652015-04-12T16:38:54.485-05:002015-04-12T16:38:54.485-05:00Yes Auma. Her understanding of imaging techniques ...Yes Auma. Her understanding of imaging techniques seems poor. I am a medical specialist but not in endocrinology or endocrine surgery so cannot give an expert opinion in this area. However s MRI post-treatment doesn't make sense. A radionucleotide seems more appropriate - with a comparative pre-scan. Iannoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-31235167330026494062015-04-12T14:03:04.922-05:002015-04-12T14:03:04.922-05:00Ian, I think she does not understand the differenc...Ian, I think she does not understand the differences between different types of scans. She mentions having an MRI right after leaving post-RAI isolation "to see how iodine worked", when it should have been WBS i131. I am no medical specialist, but I cannot imagine not having a WBS after RAI, in fact there is no mention of that type of scan anywhere in her posts, just ultrasound, CT, MRI. In interview she mentions some kind of testing with "sugar", so there could have been a PET scan at some point as well, but that does not appear in any posts either.<br /><br />There is a post coming, where I tried my best to pull together approximate timing for different tests and scans based on her own retelling of events (so she can't say journalists again misrepresented something). Maybe somebody with professional medical background will be able to use that.Aumanoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-5698641728144867742015-04-11T22:49:43.381-05:002015-04-11T22:49:43.381-05:00I'm not sure what is more entertaining - Ella&...I'm not sure what is more entertaining - Ella's commentary or the drivel that Ms Fox's supporters are posting on her Facebook page. The only difference is that Ella is intentionally entertaining. <br /><br />Reading through these ongoing transcripts makes me want to headbutt the screen sometimes. Ms Fox is all over the place. <br /><br />The big question for me (and others posting on here) is the timing of her post-treatment scan and whether she has a similar scan pre-treatment. From what I have grasped she didn't have a pre-treatment scan. The post-treatment scan was likely not long after her RAI and I suspect showed what would have been present on a pre-treatment scan if she had one. And as everyone has said her resolution of disease is just a reflection of the RAI treatment doing its thing (which takes up to 12 months). <br /><br />I'm amazed she has said she has never heard of Belle Gibson and uses the excuse of not being interested in usual media and its associated stories. Even if she was unaware of Ms Gibson, it is encumbent on her to make herself aware of such cases due to the implications they have on her claims. <br /><br />Iannoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-23570969079300485572015-04-11T20:22:25.683-05:002015-04-11T20:22:25.683-05:00That's a shame. I was hoping Daniel would wri...That's a shame. I was hoping Daniel would write the report. I'm sure he's 'basically an oncologist'. Or maybe he is her lawyer. Basically.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-6081372601719738162015-04-11T19:57:30.622-05:002015-04-11T19:57:30.622-05:00Well apparently now on "advice of her lawyer&...Well apparently now on "advice of her lawyer" Candice will not be posting her medical records, but rather some sort of report. That skips the entire purpose and is no good for getting to the truth. How sad. She promised to share her medical records. I told her not to waste her time then.Violethttps://www.blogger.com/profile/06774200172248356019noreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-51292730403234177182015-04-11T18:08:40.027-05:002015-04-11T18:08:40.027-05:00Count your blessings: imagine transcribing an 80-o...Count your blessings: imagine transcribing an 80-odd minute long podcast featuring Candy's friend Daniel. Catnoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-57647059613334183402015-04-11T11:11:01.481-05:002015-04-11T11:11:01.481-05:00Desiccated thyroid extract vs Levothyroxine in the...Desiccated thyroid extract vs Levothyroxine in the treatment of hypothyroidism<br /><br />http://www.thyroid.org/patient-thyroid-information/ct-for-patients/vol-6-issue-8/vol-6-issue-8-p-3/<br />Jarednoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-25801384398555655932015-04-11T11:09:25.467-05:002015-04-11T11:09:25.467-05:00just quickly before I go to bed...
- the 'na...just quickly before I go to bed... <br /><br />- the 'natural' thyroid products can have variable amounts of T3/T4 (and unnatural binder ingredients) so can have the TSH and TG suppressive effects. <br />- hope that doctor in fremantle is watching her thyroid function tests, calcium and vit D (... there was the whole alleged hypoparathyroidism too)<br />- I have a hypothesis that the downward trend in her TG levels may be completely explainable with the thyroidectomy + neck lymph node dissection, adjuvant RAI (which was still having its effect during the dropping TG levels) with the added thyroid suppressive therapy (be it thyroxine or dessicated porcine thyroid, etc.) <br />- only thing is I dont know where the scan with the lung disease fits into it.<br />- again speculation not very helpful... but it means that when she reveals her information it may be kinda internally consistent with what she has said. If this is the case it will only further galvanise the efforts of her and her supporters even though it is just the natural history of the disease treated with conventional methods. <br />- will try to explain myself in more detail in the coming week. <br /><br />take care until thenJarednoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-70472996941350923162015-04-11T10:40:43.973-05:002015-04-11T10:40:43.973-05:00I didn't catch the use of the phrase "mad...I didn't catch the use of the phrase "made up".<br />Freudian slip, perhaps?<br /><br />But really, I just want a scan that shows she had thyroid cancer, a scan that shows she has benign tumors in the liver, and a scan that shows her lung involvement. With her name and the dates visible.<br /><br />Beyond that, if she wants to pull a "Chris Beat Cancer" and say that she had cancer, had conventional treatment, went into remission, and is keeping herself there by eating pineapples..whatever. That's stupid, but if it's based on her actual cancer story, it's no worse than a ton of people out there shilling their stuff online.<br /><br />Posting the scans isn't a hard thing for a cancer patient to do, so I don't understand why she's making such a fuss about it. Unless, of course, said scans don't exist.Annnoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-14248405316203767112015-04-11T10:06:35.015-05:002015-04-11T10:06:35.015-05:00The whole point was that no one would be "cre...The whole point was that no one would be "creating a report". It would just go up there on its own without analysis and we would work to get independent oncologists to offer their professional opinion on the matter. Having Candice create a report defeats the whole purpose of this, so I guess that it why she is going that route. Violethttps://www.blogger.com/profile/06774200172248356019noreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-65311929312536491582015-04-11T09:30:25.388-05:002015-04-11T09:30:25.388-05:00Thanks, David. I never expected that my own cancer...Thanks, David. I never expected that my own cancer experience would turn out to be helpful this way, but I am very glad I can clarify some things. Papillary thyca has some unusual treatment/diagnostic methods and great survival rates that a lot of people are not familiar with, making it easier for Candice to come up with these outrageous claims.Aumanoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-83662055258294720142015-04-11T07:27:44.029-05:002015-04-11T07:27:44.029-05:00Yes, that would be awesome. Sometimes a little sat...Yes, that would be awesome. Sometimes a little satire is just the thing.Ellanoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-44456563683500277912015-04-11T07:25:44.007-05:002015-04-11T07:25:44.007-05:00Thanks, DavidP. I do need to clarify that chemo ob...Thanks, DavidP. I do need to clarify that chemo obviously has risks. As others have said, it's about weighing those risks against the risk of dying from cancer. What Candice seems to imply, though, is that chemo always kills, or always does harm, and that you can cure cancer without it. That is a skewed and potentially dangerous understanding of the facts.Ellanoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-62204377824681145812015-04-11T07:21:13.020-05:002015-04-11T07:21:13.020-05:00It's too late for me, but save yourself!It's too late for me, but save yourself!Ellanoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-32445197364370350792015-04-11T06:15:27.223-05:002015-04-11T06:15:27.223-05:00---I'm wondering what 'get a report made u...---I'm wondering what 'get a report made up' means. Maybe she'll find her scans and make up her own report? ---<br /><br />Yes, she says she wants to find a trustworthy source to do an investigation and report. I'm afraid any source she considers trustworthy will be very irrelevant.<br /><br />I wrote in the "post to page" section on her FB, that she could just provide the scans and info from the hospitals and there is no need to come up with a report, because hospitals track treatments very well, but that post is not visible. Maybe it got sprayed with anti-troll spray and melted:/Aumanoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-3768534720130835842015-04-11T05:58:56.620-05:002015-04-11T05:58:56.620-05:00And one more remark (I got all curious:)
-----I we...And one more remark (I got all curious:)<br />-----I went to one of [Tolman’s] things, and he basically said about Thyroxine being really bad, and I already knew it. Because I was getting really bad skin, like I had really bad acne, like everything was going wrong. And I found out that this one doctor in...Fremantle would give me natural thyroid tablets. So I went there, and ever since I've been seeing her, because she is a doctor in in the MD sense, but she's also...the only one who'll give me these natural ones, and she's all, she’s a balance."----<br /><br />Natural thyroid tablets sound a lot like dessicated porcine or bovine thyroid gland pills: http://www.quackwatch.org/01QuackeryRelatedTopics/armour.html. Don't know the name for them in Australia, but I've seen them mentioned a lot in patient forums - Armour, ERFA or something. If she is using those, her TGB results might be more difficult to interpret, because the dosing is not as reliable as with pure thyroxine. From what I have read, doctors try to talk cancer patients out of using NDT, because it is not as reliable in TSH suppression.<br /><br />Also, as far as I know, natural dessicated thyroid pills contain TGB as well. Can thyroglobulin amount in the pill also interfere with TGB readings in blood tests or maybe the mechanism is not as direct? I have read that in the case of cancer testing while being on NDT, some time before tests the patients are switched from Armour to synthetic T4/T3 to avoid incorrect test results.Aumanoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-9141749876232869802015-04-11T05:29:36.031-05:002015-04-11T05:29:36.031-05:00Your commentary was priceless.
Are you secretly ho...Your commentary was priceless.<br />Are you secretly hoping that The Chaser will produce an expose? Because I know I am. I don't know what would be more amusing: Chas visiting the nutritional "oncologist" or Candice being interviewed by Andrew & Julian...Catnoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-57649838467361238212015-04-11T05:23:24.551-05:002015-04-11T05:23:24.551-05:00Hmm, I have an idea now:
She says: In six months ...Hmm, I have an idea now:<br /><br />She says: In six months I went and had the test done, and it went from level 13, to naught-point-seven [0.7]. So no large tumours, just small-scale cellular cancer left in me. <br /><br />Doctor says this: But we still want to mop up that 0.7 with some more radiation<br /><br />If at that point there were no visible tumors on WBS, but TGB was still higher than they would like, PET scan could have been done during that check-up phase, I think.Aumanoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-58060364979718167892015-04-11T05:03:33.520-05:002015-04-11T05:03:33.520-05:00Yes, Candice's oncologist or radiation therapi...Yes, Candice's oncologist or radiation therapist, I also salute you and express my condolences for having a patient like her. You must have patience worthy of a saint.Aumanoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-76399676403205050112015-04-11T04:48:36.626-05:002015-04-11T04:48:36.626-05:00Hi Jared,
In comments on FB I mentioned that a ch...Hi Jared,<br /><br />In comments on FB I mentioned that a change in TGB could also be explainable with TSH levels and suppression and that it is the "cherry on top" after surgery and radiation. Candice said that she is not as suppressed as the tests [sic!] would like, apparently thinking it is proof for pineapple cure. She keeps saying all the time that after radiation TGB was 13, then went down to 0.7 in 5 months until May and then decreased to, if I am not mistaken, 0.2 at the latest tests. Also tumors have disappeared. <br /><br />Not sure where PET scan would fit in and she hasn't mentioned timing for it. Tricky, but it actually does not change the severity of claims or the big picture, as Violet said. I will keep this in mind, too.<br /><br /><br /><br />Aumanoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-730461711461750592015-04-11T02:37:11.321-05:002015-04-11T02:37:11.321-05:00I could sell Candice copies of my latest scans. Th...I could sell Candice copies of my latest scans. They are NED and a different kind of cancer, but I won't tell if you don't.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-68846423493322480672015-04-11T02:33:16.660-05:002015-04-11T02:33:16.660-05:00Hmm, so her friend Daniel is arguing that there is...Hmm, so her friend Daniel is arguing that there is no point in Candice providing medical evidence, because she could just steal someone else's scans? Sounds like he has a lot of faith in Candice's medical claims. I'm sure it would be much easier to produce her own scans rather than attempt to steal someone else's. Maybe she could buy some of Belle's scans? Oh that's right, she doesn't have any... Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-1367626595633460322015-04-11T02:17:20.567-05:002015-04-11T02:17:20.567-05:00Ella - thank you for your service to humanity by t...Ella - thank you for your service to humanity by transcribing the Candice chronicles. I had a quick look but I just can't do it. An add popped up for the banana girl, that was almost worse. I shouldn't joke about this sort of thing (bad karma etc, negative energy) but if cancer doesn't get me, watching these podcasts for too long will.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9220010756067874210.post-36606141041920320172015-04-11T02:13:39.926-05:002015-04-11T02:13:39.926-05:00Daniel's objection to my scans were that they ...Daniel's objection to my scans were that they could have been stolen from someone else's FB page. Therefore posts from Candice would be worthless? I don't get it. But then, I often find myself stumped by illogical claims. -MAnonymousnoreply@blogger.com